Well, that's what got someone to my blog today and I don't want them to think they should base whether or not their can be successes with high fsh just based on little ol' me.
If you need some hope right away, go check out the Over 40 Stats Only (it's on the left hand side of the page when you click on the link).
When you get diagnosed with high FSH it feels like the whole world crashes down upon you. I remember when it happened to me.
See, the mister and I got married after many happy years of living in sin together because we wanted to start a family. Yep, we were finally ready and we (ok, really the Royal We for the next part) were incredibly arrogant. It was going to happen on our honeymoon.
So we went to an island paradise for 3 long and loverly weeks. We came home with tan lines, sarongs, tons of pics but no baby on board.
Then I started charting. I read the book, got the thermometer and even found a website where I could do it all online. Too cool! I joined some boards with people that were just starting out ttc. I even joined some for oldsters like me. And we tried. And tried.
There were problems with my charts. Short cycles and really short luteal phases. Like 8-10 day luteal phases. That's never a good thing. Then I tried supplements and tried to get into see my ob/gyn. She was super nice. I was lucky because she looked at my charts and said we should run bw and start to rule things out. See, I was 'old' back then at 37 and she didn't want to screw around.
I didn't hear back from the bw for a while. I remember calling the ob/gyn office and getting a nurse on the line. Must have been a pretty inexperienced one because she told me my doc was on vacation and then she just read me the results. I wrote the numbers down and consulted a higher power to help me interpret them. The internet.
Well, let me just say if it's Friday afternoon and you're at work without much to do except research lab results, you are very thankful that you have a lot of space and not a lot of co-workers. You can cry a lot and no one hears you.
I found a lot of very scary information at first. A lot of sites that said things like "less than 1% chance of pregnancy." It was a long time until I found anything even remotely hopeful.
Then I found the High FSH message boards. They were like crack for me for a very long time. There was hope there. And supportive women. And babies. Ok, not everyone had babies but way more than 1%.
So I lurked. I read. I cried. It took me a very long time to post there but I met some incredible women there.
I read that hopeful book by the woman who had an FSH of 41 at 41. I thought about taking wheatgrass. I researched EVERYTHING.
I made an appointment with an RE who came very highly recommended by a co-worker of the misters. I made the fatal error of not asking if they were high fsh friendly. If you have high FSH, you might do this once, but trust me you never do it again.
We waited a few weeks for our appointment. I knew what the internet claimed. The mister didn't believe me. They took several hundred dollars from us.
Then they told us they couldn't...I mean WOULDN'T do anything. No drugs. No iuis. No ivfs. They'd be happy to take a lot more money and only do ultrasounds. You see, what they didn't say is they care about their statistics. Tremendously. They think it will help not to treat high fsh women. Turns out this particular clinic needs all the help they can get (they just aren't very good as it turns out).
Technically I suppose we got off easy. They didn't quote 1%----they said we had about a 5% chance of getting pregnant with our own gametes. The mister took this really, really hard. It finally clicked it.
It just pissed me off. So I started researching other clinics. I'm lucky enough to live in Northern California where we have lots and lots of REs. We went to a pig pickin' (if you know what that means you've probably been to my home state) and an acquaintance shared her RE and her acupucturist with us.
I was leery so I wrote the clinic she mentionned. Sent in a cold email, if you will. I was amazed when I got a personal email from the head of the clinic AND a phone call from the IVF director. They both wanted to make sure my questions got answered. They both said of course they'd treat me and would never turn me away. That clinched it.
I decided to be pretty open with my fertility challenges. It's worked pretty well for me. I remember shortly after my diagnosis I was talking with someone on the phone. She is a member of the volunteer club I belong to and we were trying to arrange a meeting. I don't think I'd ever talked with her before. She was in the middle of a pregnancy and for some reason I just told her we were having problems.
She amazed me. Told me to hold on. Shut her office door and said she'd had problems and I should never give up. Turns out she was also diagnosed with high FSH! She totally got it and gave me lots of resources and support. She also told me she'd gotten successful with donor eggs and it was the best thing she'd ever done.
Then I went to a local gathering a couple of month's later at the Maven's house. There were 6 of us there that September day. It's been about 1.5 years and now the other 5 have all had babies: one through ivf, one naturally, one adopted, one had twins through donor eggs, and the other twins through donor embryos. It was such a relief to know there were others like me and there was real hope. I'm still playing catch up but I know that I'll get there.
Maven tried for many years and was very active in the boards. She put together an incredible success list that's still being maintained. I'll include the link later on in this post and add it to my lists. It's truly amazing to see all the women with high fsh--some ABOVE 100--and all the kid's they've had. Maven once told me she felt like about half of us got pregnant whether naturally, medicated or ivf. I know this might not be the best sample but it's a lot more than most docs would let you believe.
I remember a few months after I got diagnosed, one of my friends in wedding land got the same sentence. She was lucky--Garden State Girl--and lived right down the highway from a clinic that does wonders for us. I know she felt as hopeless as I did, but I told her to go straight to Dr. High FSH. She went straight there and has a bouncing baby boy to show from her very first cycle there.
Now, as you know, I'm still trying. My local doc believes that high FSH is just an indicator of low ovarian reserve--but not necessarily poor egg quality. He's been supportive, especially through my ectopic (just bad luck...not fsh related) and wants nothing more than to see me pregnant. He's an infertilty patient himself--built his own family through donor eggs--and that means a lot to me as well.
I spent some time being a Garden State Chick myself back last fall. I met a woman in the clinic who told me the most amazing story. I thought she was just an urban legend but she's real. Her FSH was well over 100 and she tried many cycles. In something like 4 years of trying she only ever got one follicle. Which had one egg. Which turned into one embie. And you probably know where this is going but that embie is now her preschool aged daughter. It really does only take one.
I stopped by Maven's house today. That first lunch meeting seems like such a long time ago. It was nice to catch up. Even nicer to see her successes--they're getting big and so smiley and playful now. Her house is full of baby gear. She told me it would be my turn next and I believe her. It doesn't matter so much how you get there, just that you do get there.